Giving voice to equitable collaboration in participatory design

An AHRC funded research project titled Experimenting with the Co-experience Environment (June 2005 – June 2006) culminated in a physical environment designed in resonance with a small group of participants. The participants emerged from different disciplines coming together as a group to share their expertise and contribute their knowledge to design. They engaged in storytelling, individual and co-thinking, creating and co-creating, sharing ideas that did not require justification, proposed designs even though most were not designers …and played. The research questioned how a physical environment designed specifically for co-experiencing might contribute to new knowledge in design? Through play and by working in action together the participants demonstrated the potential of a physical co-experience environment to function as a scaffold for inter-disciplinary design thinking,saying, doing and making (Ivey & Sanders 2006). Ultimately the research questioned how this outcome might influence our approach to engaging participants in design research and experimentation

What effect does Life Story Work have on Life Writing?

This practice-based research responds to the question ‘What effect does Life Story Work have on Life Writing’ by presenting both critical and creative writing that analyses the interactions and intersections between Life Story Work, medical humanities, and life writing. I like to think of this work as plaiting together concepts from these three areas, tied up with a bobble of practice research. Life Story Work (LSW) is a “defined approach which provides the opportunity for children to explore their own history” (Rose, 2012: p26). This intervention aims to help children who are looked after by a local authority or adopted to ‘make sense of their pasts.’ LSW collects information from social services files and accounts from family members, previous carers and/ or other significant people in a young person’s life. The work is then scanned, collated, and worked through in a form of the child’s choosing, usually called a Life Story Book or Memory Box (Rose, 2012; Rees, 2012; Hooley, 2015). Despite LSW having existed for 60 years, it has ‘frequently been placed on the backburner’ of development within Social Work due to the ‘more pressing’ issues and legislations that have come over the years (Baynes, 2008). More recently, there has been a resurgence of discussions about LSW in critical social work. However, the links between life writing, medical humanities, and social work, along with outcomes of LSW, have yet to be examined in any detail. To fill this gap, I offer an opportunity to examine an in-depth, autoethnographic case study of LSW experience. I write a memoir titled ‘The Memory Hotel’ (TMH) that uses my own Life Story Book and other documentation from my life (from both in and out of my time in care) as stimulus texts. Through TMH, I present several concepts: an account of care experience that considers both good and bad practice; a risky journey of discovering identity through a complicated series of entangled encounters and perspectives; along with examples of collective memories that might otherwise have been lost, and how these can be used to develop better understanding of oneself and other people involved in that person’s life. This allows me to present a well-rounded protagonist with a unique way of discussing traumatic events through humour, reflection, and a way with metaphors that does not shy away from the multiple sides of themselves. My first chapter situates concepts I wish to explore (LSW, autobiographical and other types of memory, elements of life writing practice, medical humanities, and social work discussions). My second chapter analyses the precedents of practice (published care-experienced life writing). I then explore the concepts I discuss in Chapter 1 and ideas found in Chapter 2 in my creative practice in Chapter 3: The Memory Hotel. In Chapter 4 I reflect on the value of The Memory Hotel as research. Finally, in Chapter 5, I reflect on the effects LSW had on my life writing and present grounds for further research. This thesis contributes to new forms of knowledge by demonstrating different types of collective and autobiographical memory, as well as providing an autoethnographic case study of health and social care services. It goes on to explore how these experiences and memories affect the understanding of self and identity in care-experienced life writing

The Erotic and the Vulgar: Visual Culture and Organized Labor's Critique of U.S. Hegemony in Occupied Japan

This essay engages the colonial legacy of postwar Japan by arguing that the political cartoons produced as part of the postwar Japanese labor movement’s critique of U.S. cultural hegemony illustrate how gendered discourses underpinned, and sometimes undermined, the ideologies formally represented by visual artists and the organizations that funded them. A significant component of organized labor’s propaganda rested on a corpus of visual media that depicted women as icons of Japanese national culture. Japan’s most militant labor unions were propagating anti-imperialist discourses that invoked an engendered/endangered nation that accentuated the importance of union roles for men by subordinating, then eliminating, union roles for women

Can nature deliver on the sustainable development goals?

The increasing availability of data and improved analytical techniques now enable better understanding of where environmental conditions and human health are tightly linked, and where investing in nature can deliver net benefits for people—especially with respect to the most vulnerable populations in developing countries. These advances bring more opportunities for interventions that can advance multiple SDGs at once. We have harmonised a suite of global datasets to explore the essential nexus of forests, poverty, and human health, an overlap of SDG numbers 1, 2, 3, 6, and 15. Our study combined demographic and health surveys for 297 112 children in 35 developing countries with data describing the local environmental conditions for each child (appendix).4 This allowed us to estimate the effect forests might have in supporting human health, while controlling for the influence of important socio-economic differences.4 We extended this work to look at how forests affect three childhood health concerns of global significance for the world's poorest people: stunting, anaemia, and diarrhoeal disease

Nudging pro-environmental behavior: evidence and opportunities

Human actions are responsible for many of our greatest environmental challenges. Studies from the human behavioral sciences show that minor features of decision settings can have major effects on people’s choices. While such behavioral insights have positively influenced individual health and financial decisions, less is known about whether and how these insights can encourage choices that are better for the environment. We review 160 experimental interventions that attempt to alter behavior in six domains where decisions have large environmental impacts: family planning, land management, meat consumption, transportation choices, waste production, and water use. Claims that social influence (norms) and simple adjustments to automatic settings (defaults) can influence pro-environmental decisions are supported by the evidence. Yet for other interventions, knowledge gaps preclude clear conclusions and policy applications. To address these gaps, we identify four opportunities for future research and encourage collaboration between scholars and practitioners to embed tests of behavioral interventions within environmental programs.We thank the Gund Institute for Environment for their Collaboration Grant to BF which made this work possible. Thanks to the University of Vermont’s James Marsh Professor-at-Large and Burack Distinguished Lecture Series for supporting SP and AB respectively

Impact of fatigue as the primary determinant of functional limitations among patients with post-COVID-19 syndrome: a cross-sectional observational study

OBJECTIVES: To describe self-reported characteristics and symptoms of treatment-seeking patients with post-COVID-19 syndrome (PCS). To assess the impact of symptoms on health-related quality of life (HRQoL) and patients' ability to work and undertake activities of daily living. DESIGN: Cross-sectional single-arm service evaluation of real-time user data. SETTING: 31 post-COVID-19 clinics in the UK. PARTICIPANTS: 3754 adults diagnosed with PCS in primary or secondary care deemed suitable for rehabilitation. INTERVENTION: Patients using the Living With Covid Recovery digital health intervention registered between 30 November 2020 and 23 March 2022. PRIMARY AND SECONDARY OUTCOME MEASURES: The primary outcome was the baseline Work and Social Adjustment Scale (WSAS). WSAS measures the functional limitations of the patient; scores of ≥20 indicate moderately severe limitations. Other symptoms explored included fatigue (Functional Assessment of Chronic Illness Therapy-Fatigue), depression (Patient Health Questionnaire-Eight Item Depression Scale), anxiety (Generalised Anxiety Disorder Scale, Seven-Item), breathlessness (Medical Research Council Dyspnoea Scale and Dyspnoea-12), cognitive impairment (Perceived Deficits Questionnaire, Five-Item Version) and HRQoL (EQ-5D). Symptoms and demographic characteristics associated with more severe functional limitations were identified using logistic regression analysis. RESULTS: 3541 (94%) patients were of working age (18-65); mean age (SD) 48 (12) years; 1282 (71%) were female and 89% were white. 51% reported losing ≥1 days from work in the previous 4 weeks; 20% reported being unable to work at all. Mean WSAS score at baseline was 21 (SD 10) with 53% scoring ≥20. Factors associated with WSAS scores of ≥20 were high levels of fatigue, depression and cognitive impairment. Fatigue was found to be the main symptom contributing to a high WSAS score. CONCLUSION: A high proportion of this PCS treatment-seeking population was of working age with over half reporting moderately severe or worse functional limitation. There were substantial impacts on ability to work and activities of daily living in people with PCS. Clinical care and rehabilitation should address the management of fatigue as the dominant symptom explaining variation in functionality

Bone marrow cell trafficking following intravenous administration

Peer Reviewedhttp://deepblue.lib.umich.edu/bitstream/2027.42/75122/1/j.1365-2141.1999.01779.x.pd

The relative contributions of speechreading and vocabulary to deaf and hearing children's reading ability

Background Vocabulary knowledge and speechreading are important for deaf children's reading development but it is unknown whether they are independent predictors of reading ability. Aims This study investigated the relationships between reading, speechreading and vocabulary in a large cohort of deaf and hearing children aged 5 to 14 years. Methods and procedures 86 severely and profoundly deaf children and 91 hearing children participated in this study. All children completed assessments of reading comprehension, word reading accuracy, speechreading and vocabulary. Outcomes and results Regression analyses showed that vocabulary and speechreading accounted for unique variance in both reading accuracy and comprehension for deaf children. For hearing children, vocabulary was an independent predictor of both reading accuracy and comprehension skills but speechreading only accounted for unique variance in reading accuracy. Conclusions and implications Speechreading and vocabulary are important for reading development in deaf children. The results are interpreted within the Simple View of Reading framework and the theoretical implications for deaf children's reading are discussed